Thursday, July 11, 2013
Yet another baby....... The e-mail below is about baby Kevin who was given a dire , dire picture by an East Coast hospital . Now he has a complete repair. Hey Astrid I am so happy to announce that KB received a full heart repair! Dr. Hanley said he did great! He is on his way to recovery! Thank you for your love, support and many prayers, and showing me the way, you are a human ANGEL couldn't of done it without you all! Love you! Kevin and Rahnesha I know I haven't written for a long time. Many , many more babies have had a complete repair by Doc Hanley at Stanford while the parents were told that this wasn't possible and that they sure would lose one lung or even would die..... I am so happy more and more parents are listening . Eliana is still doing amazing . I will add a picture of her . Please don't hesitate to contact me . I will help in any way I can !!
Wednesday, November 14, 2012
Sunday, November 11, 2012
Tonight I saw these 2 posts on my facebook from 2 families I talked to last year about their "given up" babies with TOF/PA and mapca's. Two completely different families posting at the same time. It is an outcry to reach more families. PLEASE read. Last year around this time 5 different families contacted me in 4 weeks time. Ever since nobody anymore..... By the way :0) Eliana is doing better then ever, Here is a recent picture of her ! She is going to pre school and LOVES it ! She is having a runny nose all the time and never even has gotten a fever . Her body is so strong now ! I remember doctors telling us we would have to go to the hospital EVERY time Eliana would have a cold.......... Isn't that amazing ? We are so thankful ! Eliana also started talking how it was when she was (in her own words) "very,very sickie, dead and in heaven." I wrote everything down in my diary. The most amazing things . It's late now , but next time I will write them all down !
Astrid Walschot-Stapp shared Doria-Family Our Journey's photo. 8 hours ago This is the baby of the parents we talked to last year ! It still mystifies me why no East Coast Docs could /would tell them about Doc Hanley ! If you know of any babies with TOF/PA and mapca's. PLEASE let them know about Doc Hanley !
This is the second facebook post from tonight......by Renee Krieg I copied it and posted. Renee is a Thoracic cardiovascular nurse. Last year she saw this blog and found her way to Doc Hanley ! Fight for your children!!!!! THe Doctors are not always right !! If Aaron and I gave up on our son he would no longer be here!! We put Cody in Gods hands and he sent us to Dr Hanleys hands! No matter what a child has to conquer it is possible!! These little babies are gods angels!! He gives them to us to show us how important life is and how amazing HE is!! Cody was born with TOF pulmonary atresia, MAPCAs and Allagile Syndrome!! He is amazing he was left to pass on and has had RSV and one heart surgery so far!! Because of his Allagile syndrome he may not be able to be repaired , but if that is the case the way he is is Gods will and he way he is meant to be! Our faith an hope remain strong! Never give up these little people they are amazing! Our son has never been on oxygen since we left the hospital last March, how amazing Gods Grace remains!! In Gods hands a always! Search out for your children East Coast medicine is behind !! I am a thoracic cardiovascular nurse!! please search out there and never give up these children want to be here!! My son has no learning delays!! The folks and Lucille Packard Children's are wonderful !! Love and prayers to all;)
Monday, January 9, 2012
Well...it looks like my prayer at the beginning of this blog is being answered in the most amazing way !
Somehow this little blog is reaching more and more people.
Just in the last 3 weeks we got three phone calls of parents of babies like Eliana .
They were given not much hope if any......
But look at the e-mails below ( parents gave permission ) ! :0)
It makes my heart sing.
We had our conference call with Dr. Hanley. He said that he won't know for sure until after she is born, but he said from what he has read in the reports, he feels he will be able to operate! He said he will continue to monitor her echocardiograms, but he feels strongly that I will be able to deliver at NY Presbyterian Hospital. Once she is born NY will do the cardio catheter and he will know then for sure how to proceed. But he is saying based on what he has read, she will be able to go home with us about two weeks after she is born. Then around 3 - 4 months we can bring her out to him in CA to operate. We could not have asked for better news!!!!!
We are so thankful to have found your blog. You have given my daughter a better chance at life. Thank you so much for sharing your story and saving us from making the biggest mistake of our lives.
A very thankful,
Will and Astrid,
> Hi How are you guys?? I
> wanted to let you know that the conference call went well with Dr. Hanley.
> He said he was moderately optimistic he could help Cody. He said he may be
> able to fix him in one surgery but he wont know for sure until after the
> cath. I told him you guys said hello and he said you were wonderful people
> and of course I concured. He seems to be quite a wonderful man himself.. I
> also spoke with Dr Stafford whom of which is also quite wonderful.. The
> people out there so far seem to be amazing so different from most of the
> folks here as much as I wish I couldn't say that..
> Just gonna take one day at a time and be thankful for everything we have
> so far. They have given us much more hope for little Cody to survive and
> have a normal life span, he will always have CHD, but as I said much hope
> and happiness to share!! Once we get through his surgery and start moving
> forward we can work out some times to meet and figure out what we can do
> to help others. I have some plans to share to with you guys to see what
> you think and I am sure both of you do as well.. We can make a
> difference!!!! :) I truely feel we can.. Look at everything you guys have
> done so far.. My husband and I cannot be greatful enough for what you and
> Eliana have provided for
E-L-I-A-N-A I remember like yesterday seeing her name engraved in my mind.
She wasn't even born , I didn't even know the meaning.
E-L-I-A-N-A " My God has answered me "
I can say with whole my heart YES !HE HAS and IS and always WILL .
PS; UPDATE ON BABY JULIA ( HLHS , Eliana's playmate )
Doc Hanley was able to do the Fontan WITHOUT Heart/Lung bypass !
This Christmas was Julia's first day without her oxygen mask !
Baby Julia was out of the hospital in 3 weeks !