Sunday, May 15, 2011

Update Eliana



I realized I didn't update on Eliana ! Our own sweet daughter . The love of our lives.
About 2 weeks ago we came back from Stanford. Eliana had a check-up catherization one year after her life saving surgery by Doc Hanley.
All looks as perfect as can be !
The part they tried to fix back home closed of , but she developed dual flow.
What a miracle .
She doesn't need anymore surgeries or catherizations until the conduit change . And that might be 5 , 10 or even 15 years down the road ! We hardly can/dare believe it.
We are so thankful.
The strange thing is that NOW all our fear comes out.
For 2 years we had to keep ourselves together like crazy . Now that all is ok ....we expect the next drama.....
Images of Eliana on ECMO.......sentences like "Suffered cathastrophic stroke " " Everybody has to die sometimes " and " You will burn many bridges " All spoken by doctors at home keep flooding our minds.
It will take a while , I think , for it to die down...
We did have a certain normalcy before going to CA for the catherization. We even had times we forgot about Eliana's chd ....but going and hearing Eliana scream "go, go , go away " when we had to lay her down on the operating table for the catherization brought everything back.
Also ; fighting for other children and waiting during their surgeries draws out deep emotions. I know we have to start living a normal life again for and with Eliana . And we will. The most vivid memories will go to sleep again for a while ....
And I will not go overboard on trying to save as many babies as I can.....
It will and does happen on its own already. Many times miraculously. Maybe the Angels on the picture taken at the Stanford Campus have something to do with this ! :0)

1 comment:

  1. Eliana is so precious! I just happened upon your blog when browsing around. My four year old son has tetralogy of fallot too. If you are interested in connecting with other tof parents and patients we have a group on facebook that you might be interested in joining. Here is the link: http://tinyurl.com/44grzok. Hope to see you there!

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