Oct 19 2010

I haven't written for a long time. A lot has happened since.
Eliana is doing great and we were able to save yet another baby. Her names is Alaina how about that !

The day after I decided to stop searching the internet trying to save babies ( it was consuming me and nobody believed me anyway ) 6 month old Alaina and her parents came to our church.

They just had found out she had severe Pulmonary Atresia and were in shock.
Their cardiologist ( same as Eliana's former cardiologist!) told them Alaina needed surgery right away . Within 5 days.
He told them the same as he told us. He foresaw many surgeries and caths. With a lot of luck Alaina's pressures could eventually go down to 50 %.Far from perfect, but better then her current pressures at 100 %.

At first I didn't want to tell Alaina's parents about Eliana's "unfortunate " adventures at the same hospital they were at . I didn't want to frighten them.
But I ended up talking to Alaina's mother anyway and asked if she wanted to know our story.
To make a long story short.
I confirmed Alaina's mothers intuition to find a second opinion . She send Alaina's medical reports to Boston and Stanford.
Boston had the same opinion as their current hospital , but Doc Hanley at Stanford was confident he could save Alaina in just ONE surgery. Which he did just 3 weeks ago !
Alaina's pressures are at 15 % . Better then normal and she won't need anymore surgeries. She will be able to live a completely normal life without limitations !

Getting the hospital to send the medical records was extremely hard. We had almost the same experience where the hospital send all the records except the most crucial ones.

Now that we are with 3 mothers , my hope is that more and more mothers will believe me when I tell them their babies CAN be saved .

Right now we are talking to a mother of a 2 year old who is not doing well . The hospital is running out of options.
I hope she will believe me and I pray Doc Hanley can save her daugther. Pray it's not too late !!

We got in touch through yet another mother in NY who read this blog ! Her son has also TOF/PA and she had never even heard of Doc Hanley. She helps chd parents get in touch with other chd families and tries to help them get in touch with the right doctors. If this baby will be saved by Doc Hanley. More and more people will be aware of Doc Hanley and more and more babies will be saved . The internet is a very powerful tool.The big hospitals still won't refer babies to the best doctors , but the information will be out there !

By the way , 12 hours after the hospital found out Alaina was going to Stanford they called us.
First question ; How is Eliana.
Second question ; Are you still working ? How are your finances ?
Third question ; Do you want to sit around the table .