Monday, January 9, 2012

E-L-I-A-N-A


Well...it looks like my prayer at the beginning of this blog is being answered in the most amazing way !
Somehow this little blog is reaching more and more people.
Just in the last 3 weeks we got three phone calls of parents of babies like Eliana .

They were given not much hope if any......
But look at the e-mails below ( parents gave permission ) ! :0)

It makes my heart sing.

E-mail 1

Astrid
We had our conference call with Dr. Hanley. He said that he won't know for sure until after she is born, but he said from what he has read in the reports, he feels he will be able to operate! He said he will continue to monitor her echocardiograms, but he feels strongly that I will be able to deliver at NY Presbyterian Hospital. Once she is born NY will do the cardio catheter and he will know then for sure how to proceed. But he is saying based on what he has read, she will be able to go home with us about two weeks after she is born. Then around 3 - 4 months we can bring her out to him in CA to operate. We could not have asked for better news!!!!!


We are so thankful to have found your blog. You have given my daughter a better chance at life. Thank you so much for sharing your story and saving us from making the biggest mistake of our lives.


A very thankful,
C



e-mail 2

Will and Astrid,
>
> Hi How are you guys?? I
> wanted to let you know that the conference call went well with Dr. Hanley.
> He said he was moderately optimistic he could help Cody. He said he may be
> able to fix him in one surgery but he wont know for sure until after the
> cath. I told him you guys said hello and he said you were wonderful people
> and of course I concured. He seems to be quite a wonderful man himself.. I
> also spoke with Dr Stafford whom of which is also quite wonderful.. The
> people out there so far seem to be amazing so different from most of the
> folks here as much as I wish I couldn't say that..
>
> Just gonna take one day at a time and be thankful for everything we have
> so far. They have given us much more hope for little Cody to survive and
> have a normal life span, he will always have CHD, but as I said much hope
> and happiness to share!! Once we get through his surgery and start moving
> forward we can work out some times to meet and figure out what we can do
> to help others. I have some plans to share to with you guys to see what
> you think and I am sure both of you do as well.. We can make a
> difference!!!! :) I truely feel we can.. Look at everything you guys have
> done so far.. My husband and I cannot be greatful enough for what you and
> Eliana have provided for



E-L-I-A-N-A I remember like yesterday seeing her name engraved in my mind.
She wasn't even born , I didn't even know the meaning.
E-L-I-A-N-A " My God has answered me "
I can say with whole my heart YES !HE HAS and IS and always WILL .

PS; UPDATE ON BABY JULIA ( HLHS , Eliana's playmate )
Doc Hanley was able to do the Fontan WITHOUT Heart/Lung bypass !
This Christmas was Julia's first day without her oxygen mask !
Baby Julia was out of the hospital in 3 weeks !