Friday, July 22, 2011

waterslides , miracles and cookies







How can I begin to explain how in love we are with Eliana ? :0) How is it possible that just when you think you can not love any deeper it goes deeper still ?
I guess I am in a prosaic mood :0)
Today we spend the heat wave at the lake. Eliana swam like there was no tomorrow .
She loves the water . Last week we were at a birthday pool party . Eliana went down the water slide THIRTY times in a row. There were 2 slides next to each other , so each time I was able to hold her hand.
The moment she reached the pool she clapped for herself and took a deep bow for everybody who was watching. Hilarious.

Yesterday we had a small miracle. Since we are moving everything around in our house ( Will's studio upstairs , my harps to the living room and the living room downstairs ) I am on Craigs list quit a bit.
To make a long story short ; I sold our couch . When the buyers came in ( mother , father and 3 year old child ) I was floored.
I saw the little girl and "knew" . Eliana saw the little girl and "knew" too. She grabbed her hands , looked in her eyes smiling with instant recognition and started dancing and singing. No THEY started dancing and singing simultaneous.

You see ?
They had a very similar story , the girl, Brianne,also has a severe heart defect, multiple surgeries , brush with death etc.
The mother also had a life saving surgery at the moment her baby had surgery ( she was leaking spinal fluid and nobody would believe her either )
They also had miracles. Their grate Dane woke them up when the baby was on the verge of death.

We all sat down and talked for hours. It's crazy to say , but it felt like Christmas.

The most miraculous Christmassy feeling caused by the joy in both girls. I still get shivers thinking of that moment they looked into each others eyes and smiled.

Who knows , maybe this girl will end up going to Doc Hanley, too ?

It seems God is still working in that way.
Eliana's playmate Julia , will have surgery with Doc Hanley Sept 1.
I have been making Julia's mother crazy about Doc Hanley not specifically knowing why. Julia has HLHS , a totally different severe heart defect.
It turns out Doc Hanley can do Julia's surgery ( the third in a row of three ) without using the heart/lung bypass . Something they do almost everywhere else. This saves her pulmonary artery , crucial for her survival.

Please keep Julia in your prayers , she is so special and so dear to us. She is so very intelligent and sweet and indescribable angelic.
We have sad news about Eliana's cardiologist. Her little 7 year old girl has a recurrence of brain cancer. Please pray for her , too. Her name is Julia also.

Life seems sometimes so unfair, but then it brings you to the bare, bare beauty of life , too.

Julia knows when her mom is sad . Julia doesn't get to go to church , nor is she exposed a lot to biblical jargon. But her mom told me Julia hugged her 3 times saying" baby Jesus."

I am not making this up ! :0) Brianne saw a picture of an angel and told her mother she had seen one.
Eliana told me she saw angels singing in a blue light. ( and here stops the seriousness )
When I asked her what they were singing about she said " cookies"!!!!!! :0)

Oh well , enough for now.

PS Baby Amberlyn is home and doing amazing. She will go back for hopefully a full repair in a couple of months depending how fast her vessels grow.