Last week I felt the urge to post the following on my face book. ( see below /next post )
In response to this I talked to Amberlyn's mom.
Amberlyn's experience was very similar to Eliana's. ( Ecmo , failed surgeries etc,) Amberlyn was about to have her second surgery March 31 The docs had told her mother they were the best , but that they wouldn't be able to save Amberlyn's lung and that A.very well might die......
I begged Amberlyn's mom to send A.'s medical records to Doc Frank Hanley at Stanford . It was hard for her to even believe that Doc Hanley might be able to help her daughter when the docs here said they couldn't.
I told A.'s mom to also talk to 2 other mothers whose babies were send home to die and whose babies are alive and well because of Doc Hanley.
Well , she did talk to the 2 other mothers and she did send all A.'s medical records.
Doc Hanley just told her he can save her babies life and lung. He told her he had helped babies in much worse shape and that he was very confident that he could help her ! The same words he used talking to us when Eliana was almost given up... Eliana is singing and dancing as I am writing this.
I write this in the hope that more mothers in similar situations will read this.
My dream is that one day a docs loyalty to an institution doesn't go above the welfare/life of a child and that the docs will be able to refer patients to other institutions without being fired. That hospitals will work together instead of compete. ( in Michael's book "Walk on Water"you can read more about this )
I will post my facebook post in next post ( have trouble copying and pasting :0)
Thank you for reading this. Please spread the word !
POST Facebook
Message from baby James' mother
liljamesmommy · Pass a Note!
Posted 19 hours ago
We also found a miracle in Dr. Hanley at Stanford U in CA thanks to Astrid who already posted here. Our son was sent home to die according to docs in MD, but now there is lots of hope. We have actually moved to CA to have Dr. Hanley fix his heart. You have to check him out. The earlier you get here, the better. We waited 8 months too long and now our son is paying for it. Good luck!!
End quote.
Baby James had a full repair a month ago and he is home now !
The day after Eliana's first hospital found out we had send somebody to Hanley they called us and asked how our finances were and if we wanted to sit "around the table "........Not for a million dollars will we keep our mouths shut.
Soon Eliana will be able to give baby James a hug for the first time !
Praying many more babies will be saved.
